What Is Neurofibromatosis

Neurofibromatosis is a genetic disorder that causes tumors to grow on nerve tissues, and you can either get Neurofibromatosis from your parents, or due to a mutation in your genes. These tumors are typically benign, but sometimes they can become cancerous. They can develop anywhere in the nervous system, including the brain and the spinal cord. There is no cure for this disorder; however, there are treatments that can focus on controlling its symptoms. Three types of Neurofibromatosis exist. Neurofibromatosis 1 usually appears in childhood and is characterized by changes in skin coloring. Neurofibromatosis 2 is less common and typically results from the development of benign, slow-growing tumors in both ears. Schwannomatosis is the most rare of the three, and usually affects people over the age of 20. This causes tumors to grow on the skull or spinal and peripheral nerves.

Signs Of Neurofibromatosis

Because there are different types of Neurofibromatosis, each one of them has different signs and symptoms.

Neurofibromatosis 1 (NF1):

  • Freckling in the armpits or groin area
  • Tumor on the optic nerve
  • Tiny bumps on the iris of the eye
  • Soft bumps on or under the skin
  • Bone deformities

Neurofibromatosis 2 (NF2):

  • Gradual hearing loss
  • Ringing in the ears
  • Poor balance


  • Facial drop
  • Loss of muscle mass
What Causes Neurofibromatosis

It is caused by genetic defects (mutations) that are either passed on by a parent or occur spontaneously at conception. The greatest risk factor is a family history of this disorder. The genes that are involved depend on the type of Neurofibromatosis. 

NF1: Located on chromosome 17, the NF1 gene produces a protein that helps to control cell growth. When this gene is mutated, there is a loss of neurofibromin, which causes cells to grow without regulation.

NF2: This gene is located on chromosome 22 and it helps to suppress tremors by producing a protein known as merlin. If NF2 starts to mutate, there is a loss of merlin, which causes cells to grow uncontrolled. 

Schwannomatosis: SMARCB1 and LZTR1 are genes that help to suppress tremors, but they can lead to Schwannomatosis when they become mutated. 


Dherbs Approach...adjusting your diet is always key!

Natural Remedies
  • Recent research has discovered the ability of bee propolis to suppress the growth of human tumors from Neurofibromatosis and cancer. Propolis is a natural resin found in young tree buds. Bees collect it for use as a glue to seal their hives. Propolis is an exceedingly complex product that contains substances which prevent and treat diseases that go from cancer to the common cold. You can consume it either orally or apply it topically.
  • Aloe vera has powerful anti-inflammatory and antioxidant properties. Consuming the fresh gel within the aloe leaves has been associated with a stronger immune system. Additionally, aloe attacks abnormal cells, eliminating them from the body while leaving healthy cells intact.
  • Certain essential oils, for example castor oil and oil of oregano, may help alleviate the symptoms of skin growths that are associated with Neurofibromatosis 1. Making sure these oils are 100 percent plant-distilled is important because you don't want any other chemicals in them. 
Things you should eat
  • Turmeric
  • Ginger
  • Raw unfiltered apple cider vinegar
  • Garlic
  • Green tea
  • Broccoli
  • Brussels sprouts
  • Green cabbage
  • Fresh aloe vera juice
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